Thanks guys I will talk to my Doctor. I try the exercise in moderation. Sometimes it really aggravates more than helps though. I guess I expend so much energy just to make my legs do what I want them to I defeat my purpose.:p I did get myself a wii though, so I use it several times a week! Its really fun and you don’t think of is exercise!! Gary, I see you are from Lake Jackson, I lived in Angleton.:D
Thank you all for your words of encouragment I really appreciate it. I find such comfort in knowing that others have been threw this very hard circumstance and gotten threw it. My mom has gotten treatment. She has received 2 different treatments of the IV 5 doses each time and she received one treatment of the blood therapy. I think it was four or five days I am not sure. She did improve for a short while after the blood therapy and was able to move her right hand a little but now she is unable to move her fingers or hands at all and all she feels is pain. She is getting the medicine for nerve pain and a lot of other pain meds. Her spirits were a little better yesterday afternoon. She just has so much anxiety and fear of being forgotten by nurses or resp. therapist and staff in general. We try to have a family member with her during the days. I asked her today if she wanted to see the kids for her B-day tomorrow and she said if she is having a good day in regards to her pain level. She does not want them to get upset because so many times when people who have not seen her do come to see her they get so emotional for the first time. I dont know if anyone is ever prepared to see someone they love in this state of condition. My hat goes off to you who have been able to see yourself and others thew this terribly frightening ordeal. I know in my heart she will recover to what degree I am not sure but we as a family continue to pray and appreicate all your prayers also. Thank you so much again!!
[B]Thank you all for your prayers and encouragement[/B]. Lee, I will let my husband know of your offer to PM or e-mail you with any questions or concerns. I appreciate your support.
My PCP thinks there is a correlation between the GBS and cancer. “Paraneoplastic neurological manifestation” having to do with certain antibodies. He tested me for “anti-yo”—a particular antibody that can be present with ovarian or breast cancer and affect the nervous sysytem. Mine was negative so I rather blew his theory.
I’m ready to get the show on the road. GBS was simply dress rehearsal!
Hugs to all of you!
Thanks Andrew. I’ve just bookmarked the thread you mentioned. Did just a bit of quick reading and realized that I need to be far more clear-headed to take it all in! Lots of information there, but also plenty of questions springing up based on the information being disseminated there. So I need to sit down first thing in the morning (when I’m at my most sharp) and read through. One thing is clear, these folks are in far worse shape than I am. Of course, I’m a bit younger as well, so my symptomolgy just hasn’t had a chance to advance to that level yet.
Many thanks to all of you who have responded. I’m looking forward to getting into the mix slowly but surely. Sitting at the ‘puter is always a challenge for any length of time, so I might be a bit spotty. A big hug to you all.
Thank you all of you, I’m very thankful.
Of course, finally I obtained my doses of IVIG and now I fell really well. For me the IGIV is miraculous, I can go ahead with my life as a “normal” person.
But you know what happens sometimes with a doctor without experience, makes doubt you which you know it’s truth.
Next Monday I’ll have an EM and I’ll be able to talk with an experience neuro, and of course I’ll tell him what happened with the ER neuro.
Thanks again because I know I’m in the right way.
Thanks to all of you once again for your best wishes.
Through your best wishes, our stronge hopes of terror free world get emerged.
Really the world is so beautiful, but I do not know why such terrorists want to destroy such beautifulness instead of enjoying it.