Thanks ajgeb

Glad to hear your success story. While certainly not 100%, I can live with my present condition especially if I maintain it while coming off the IVIG. We’ll see how it goes.

Cheers

Ron

Hi, Ron,

After full recovery, my doctor and I decided that it was time to taper the IVIG dose. We originally extended the intervals between treatments from 3 to 4 weeks, for about 6 months, and since there were no ill effects, we then started cutting the dose. I believe my final treatment was July 09 (although it may have been July 10, but I just cannot quite remember). I have had no IVIG since then. I do continue to take some gabapentin for pins and needles in the backs of my hands and occasionally for my feet, but given that I have severe degenerative arthritis in both shoulders (caused by an auto accident decades ago), we believe that the problem is more muscular-skeletal than nerve related. I have and have had 100% motor nerve strength, my weight training (largely curtailed because of the shoulders, but still do some) and cardio are all back to pre-disease levels, and have been for some time. I have been skiing, scuba diving, and lots of traveling without ill effects. In fact, sometimes my hands and feet do better when I travel (something I enjoy very much). It would be easy to say that motor nerves and function are and have been at 100% for quite some time, sensory nerves at 95% – 98%.

As many have pointed out in this forum, everyone is different. Know your body, ask questions, and be sure to give the doctor plenty of feedback. I hope your recovery continues to go well.