MAC34/what to do

March 8, 2008 at 4:50 pm

I dont know what to do or how to stay postive anymore. I know I’ll gett worse and I don’t want to be a burden any longer. I hate this body of mine and I wish I could make myself happier and remain positive but I am reminded every minute of every day that I am ill and I will always be.
[COLOR=”DarkOrange”]Anyone that has dealt with CIDP for 13 years and a stay at home Dad has a lot of internal strenght.I know how upsetting it is to keep getting progressively worse and to fight the feelings that you are currently having. I’m ashamed to say i have some of the same feelings and have only been fighting for four months. I too am reminded every day of what i can not do, drive, cook, clean, walk, the list goes on.
I hoping for some new treatment, as they are working with different meds. Right now would settle for 50% improvemnt. Somehow am still fighting the always will be ill, but it is in the back of my mind.
As for staying positive do you have any hobbies or interests that can give you a sense of accomplishment or spiritual things that can bring a sense of peace.
[COLOR=”DarkGreen”]I do not know if you are on any, but have found starting a low dose anti-depressant have been of some benefit.
Also, am making myself spend a few minutes each day finding something to thank God for, five items, each day, every day. At least for that time period i’m focusing on something positive
Know you are with friends here that support you