lumbar punctures/emgs/nerve biopsies

June 25, 2011 at 5:40 pm

I read then re-read again and again on all these tests—here ,other (less knowledgable sites) different hospitals/doctors opinions etc before heading to mayo for my second opinion. I know there are many who will disagree– but i went to Mayo with the thought that i would do any test offered or available that would help find a treatment for this disease. It is so rare anyway. then take into account everyone who has it has different symptoms,responses etc. It was a tiring week and i did not enjoy it at all—but in the end I am glad I endured it and went through with every test available for cidp. I do not mean to influence your decision at all—but sometimes even having a test that comes back negative can rule things out and bring you a step closer to finding appropriate treatment. for those that have correct diagnosis and are receiving treatment thats effective this isnt such a concern—but if what your currently doing isnt working then keep searching,testing asking etc until it is—-this is the phase i am currently in too. : ) Lori