Loss of Appetite

August 5, 2007 at 7:24 am

Thank you for your responses. My friend initially went to a neurologist and was diagnosed with GBS. At that time, she didn’t have any relexes in her feet and no knee-jerk response. A while later, she went back and was declared “cured” because the reflexes had returned. She tried another neurologist and he took some blood samples, but nothing ever really came of that. Other than that, she hasn’t tried any of the treatments that are discussed in the GBS newslatter and on this forum. She really hates doctors, and would rather stay home where she’s more comfortable with her feet up, than have to get out to see a doctor. We both have the same HMO, and I don’t think these people are that knowledgeable about GBS. It’s kind of discouraging. Anyway, she keeps hoping that some day it’ll go away as mysteriously as it appeared.

Thank you all again,

Loss of appetite

March 18, 2007 at 6:15 pm

Becca, as Jeff mentioned, I think a number of people have mentioned the weight loss at onset of GBS. I lost 10 lbs right off the bat but was convinced it was the hospital food. Two years later, I’m down 45 lbs, some of that was okay, but I am too low now for where I should be.
Try to keep on top of the weight issue. Sudden weight loss can lead to energy loss and that is something you are going to need. Since fatigue will follow you around for sometime to come, be sure you are very conscious about your nutrient intake. It plays a big part in recovery.

Take care,