Alison,

Thank you so much for your reply, even though I do not have CIDP or GBS I am aware somewhat of what you all go through I see it with my husband. There is not much knowledge of these disease and it is hard to explain to someone as to what they are. Both of these diseases there is not much awareness in Dr’s on these, and maybe it is because I am from Kansas and not much technology here. Alison, could you tell me what and how many days you went through this pp and maybe what I can expect?

Thanks

I completely agree with Suzanne, I have found out more here about our condition than any doctor. I also agree and have experienced that rest – de-stress is the most helpful medicine. I’m doing alot more resting these days and when I think I’m feeling normal and try to do more – guess what I have to rest again and again. The more I try to do the more I am down.
But I do get to get up for awhile. I have learned that I can’t over do it and I am the kind of eprson who doesn’t like to say no. I’m learning. All the symptoms come back when I’m tired. My face is still burning, but if I rest it goes away for awhile. Emotional stress really stimulates all the bad stuff. God bless you all.