December 2, 2011 at 11:10 pm
no–when i was getting the 130 gms (loading dose) i was getting it every 12 weeks. When i started getting weekly infusions, i got 26 gms weekly. Been two weeks since i finished the 16 week ivig regiman, currently on nothing.
November 30, 2011 at 11:07 pm
do you mean 300 grams? if so- that is a high dose. I am 5’9″, weigh 140 lbs and was getting 130 gms over 2 days when getting the loading dose.
I found that when Dr Dyck switched me to weekly infusions–even though he decreased the dose from 2 gm/kg to 0.4gm/kg that i felt better than the higher dose at less frequent intervals. makes me wonder if frequency isn’t as important as amount.