February 7, 2011 at 1:07 pm

Congrats on your baby boy! It sounds like you had it as severe as I had G.B.S. It will be 15 years for me this Valentine’s Day, I spent 15 weeks in the hospitals, 6 in the I.C.U on a ventilator. I have severe nerve damage in all of my limbs, and I also got Bell’s Palsy, which shows up when I am tired.
Because we have electricity in our bodies, when it is summer, and we get lightening storms, it causes me alot of pain, it feels like the lightening is hitting my body-my Neurologist explained the science behind this-and even if I step on a cord from a lamp or whatever, it will feel like my foot is being “lit-up”, also weird but true science. When we get low-pressure weather systems moving in, my nerve pain gets worse with them, just like some people get achy bones and joints.
There are many other triggers that I watch out for, it makes any long term plans hard to make, as I never know what kind of day I am going to have.
About 3 years ago, I finally bought a new bathtub, nor a Jaccuzi, but an air-jet bathtub installed. I knew from being in re-hab, how comforting the water-therapy was for me, so when I saved enough, I bought one, and it sure does work for me, very relaxing, and the jets of an air-jet do not cause any pain.
I also sleep on a warm and comforting water-bed, which also helps my pain.
I have learned over 15 years, what works for me and what doesn’t.
I hope some of these “solutions” of what works for me, can work for someone else.
4 years ago, I had an accident, but what further damage to my nerves was done, is another long story, so maybe I can find a place on this forum somewhere to tell it.
Good luck!