leukodystrophys

Hi Trish,
I don’t know if you remember me, we spoke on the phone once. I remember you mentioned Mason’s Doctors questioning cidp dx. Anyway, maybe you and Lori can check this out, you because of the questionable dx. and Lori because of the question of leukons. Refsums disease and I found info on it in the ninds site. Good luck to you guys! Also thanks for the post re headaches, vomitting. I wonder if Kevin does get aseptic meningitis from ivig? Actually, I wonder about tons of things, I’m still not even sure if we have cidp or aidp! Well good luck to both of you and your beautiful boys!
Dawn:) 🙂