Learning it like a baby.

December 15, 2006 at 5:31 pm

I wondered if anyone else had it as bad as Nate did. Its kind of nice to know you did too. I have never read a post with those words “learning it like a baby”. That is exactly what he has had to do.
When he was in St Joseph Hospital, they never took him out of the bed. They just did everything with him in it.
A month after he was diagnosed, they put him into the convalescent hospital.
One day I watched them put him onto the bed with a lift, then they sat him there and let go.
He flopped over backwards. He could not even hold a sitting position. The look on his face was awful.
He just turned his head. He didn’t even want to look at me.
He has had to learn everything over like a baby too.
He could barely use his hands and he could barely even lift a 1lb weight, his muscles were so weak.
Just learning to use his arms and even be able to hold a fork was really hard. He couldn’t write his name either.
He has come a long way in 11mos but its still a daily struggle for him.
His hands still hurt a lot despite Neurontin 3 times a day.
His leg muscles are still jello but he can walk just a little.
Sometimes I look back and wonder in amazement how he even got what he has after so much damage.
I guess its a good thing to do. It helps everyone feel better.

Nate/GBS 1-06
Hospitalized 9 1/2 mos
Home 9-30-06