lauraj new also

July 30, 2007 at 11:31 pm

Hi, I am new and have CIPD. Re IVIG, I take it every other week. I started
in a hospital after being paralyzed about neck down. I had it also at my neuros office and now at home. I think its better at home. I watch movies,
snack, and try to drink lots of water – its really dehydrating.

I find that if I sit up I do a lot better than if I am in bed. I make sure I am up for about
2 hours and I dont seem to get headaches and nausea any more. I also notice the
difference between premixed and not. I like it powder.

I do not benefit as well as I could since I have “Iga Kappa” which I
have difficulty putting into words. Essentially my blood does not accept
the treatment. However I am not paralized any more, and while I cannot
walk, I am a lot better off with IVIG than without it.

There are a lot of things I need to know and am glad to network with others
and share what I can of this strange disease.

My next stop is rituxan.