Know the feeling

November 22, 2010 at 1:50 pm

I know how you feel. These are the same questions I have had. Have had GBS/CIDP for a year and a half. I continue to regain strength but sometimes I feel like the tingling will drive me over the edge. Then I remember sitting in my wheelchair in rehab and not being able to lift my arms. I’m now back to driving, walking, traveling etc., so I guess I can put up with the tingling. I still hope it goes away but only time will tell. As anyone had it go away completely?

know the feeling

September 2, 2007 at 2:21 pm

Hi Rob,

I was in the same situation and I can tell you it will get better in time. I was dx in Aug of 05. Complete facial paralysis. Reading your post reminded me of what I used to think, I cant believe how many times you smile or raise your eyebrows, until you cant. Speech therapy did alot for me, but if you cant get it, try reciting the alphabet. pick different words and take note of the letters and words that are giving you the most trouble. Im pretty sure it will be m, b or p. Get a list of words with those letters and practice them. My wife used to take pictures of me once a week and you will see a dramatic change in a short time that feels like forever. How is your vision? That was my worst problem because my eyes were paralysed and I was seeing double for about 3 months. My recovery took about 3 to 4 months so be patient, get rest regularly and hang in there.