I am very familiar with the lack of learnedship some neuros have. My also said there is no pain in GBS but thanks to this forums members and also the main forum I found this to be totally untrue. I also copied some of the Foundations pages which I highlighted and handed them to my neuro. He again said they didn’t exist. I am no longer one of his patients. I now use Kazim Sheikh, head of the neuro dept at the University of Texas Health Science. He is also a professor there. By the way, I only had a 2 1/2 week wait to get an appointment there. Unfortunately doctors sometimes engage mouths before thinking. God Bless.

First keep your chin up ..things do get better !!;) But by all means be your own advocate ….. Remember that the doctors are only giving an educated guess . You know your body the best and if something doesnt feel right or you have questions ….. Don’t feel bad asking and always expect an answer 🙂 I was just in the hospital for my IVIG and my nurses had never administered the IVIG and so I explained how they normally got mine and what worked best for me . You will learn as you go ….. Read as much as possible and by all means there are so many people here who are so willing to give advice or if you just need to vent …… Knowledge is definitely power when you are dealing with all this ! Good Luck !