How are you this day. Thinking of you and praying for you?

Hello,

I’ve also been experiencing the “racing heart” and “palpitations” that have lasted as long as 7 days straight non stop. I started them 4 days into my diagnosis, which was on 9/1/01. They never stopped completely and were always there. All of the doctors I saw told me that I was just sensitive to my heart beats. Even after “catching” the episodes while I wore a heart monitor. I spent the last 6 years dealing with my heart beating 140+ beats per minute for days after days with no relief. They happened when they wanted to. I could be sleeping, reading a book, taking out the trash, showering, with stress or no stress. Nothing in particular triggered them.

After leaving the AF, with much frustration I turned to the Veterans Adminiatration. I was recently in the hospital for 5 days while they evaluated it throughly and do believe that my GBS was the trigger to a damaged nerve that is sending faulty signals shooting off into my heart. I’m on medication now that seems to have it under control, even though I can feel my heart “trying” to speed up. My blood pressure is naturally low, and my heart rate was also. I’m within normal weight and not obese, I do have a thyroid problem (that came on 1 month post diagnosis of GBS) but those numbers are good.

I guess the point is that if you feel like something isn’t right with you it probably isn’t. I was told that this kind of speeding up and slowing down over an extended period of time can “Wear out” the heart muscle way before it’s time. That is why I take the medication. Ask your doctor to give you the 7 day heart monitor so that you can “catch” the palpitations and he can see them on paper. There is so little study on GBS when it relates to our internal organs, that there is no way that someone can say that it can absolutely be ruled out as the cause.

Listen to your instincts, get it checked out. I’m glad that I did! I can live better than I did before!:)

Karen