WELL, I JUST RECEIVED THE PHONE CALL FROM NEURO DOC AND HE HAS DX ME WITH CHRONIC GBS, HE SAID THAT THE PROTIEN (SP) IN MY SPINAL FLUID WAS 200 AND IT SHOULD OF BEEN MY AGE (43) AND HE FOUND WHITE BLOOD CELLS ALSO (60) OF THEM, HE IS WAITING FOR A CULTURE TO COME BACK AND HE IS GOING TO START ME ON PREDNISONE 60MG ON FRIDAY, AND ALSO SAID THAT IT SHOULD TAKE 5-8 WEEKS TO REVERSE BUT WE WOULD TALK MORE ON FRIDAY WHEN I SEE HIM, DOES THIS SOUND LIKE ANYONE ELSE, ANY INFORMATION ABOUT TAKING PREDNISONE (sp) I WOULD LOVE TO HEAR, HE TOLD ME THAT I WOULD GAIN WEIGHT , THAT I WOULD REALLY HAVE TO WATCH WHAT I EAT, BUT THINGS WILL GET BETTER. HE SAID HE IS GOING TO TALK TO MY PHYSICAL THERAPIST. I HAVE TO SEE ONE OTHER DR HE IS A UROLOGIST, ONCE AGAIN I AM RAMBLING ON. I HOPE THAT EVERYONE IS HAVING A GREAT DAY, I LIVE IN MASSACHUSETTS AND THE WEATHER WAS WONDERFUL TODAY. HOPE ALL IS WELL TALK TO EVERYONE SOON, I HAVE TO SIT AND PROCESS ALL THIS.
TALK TO EVERYONE LATER
Welcome to your new family, where we feel what you feel. These syndromes can happen at any age, young or old. I am younger then your father, but still a senior citizen. My feet are also numb, for me a big part of CIDP. You can learn to live with it. We are dealing with a chronic illness, so being scared and frustrated and stressed, can cause memory problems. IVIG’s are a very common treatment for CIDP and they are used to control progression to give us time to try to heal. Do talk to your father’s doctor to find out whether this needs to be tried.