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November 14, 2008 at 7:30 pm

I had to go back a few pages–what are we naming for Norb, Jan—the red worms??? I have one think to add, YUCK….:D

Norb-I spent the whole day listening to Eva Cassidy-I am hooked on that CD.
Discouraged lately-it seems we are all going through our trials. How I wish I could wave a magic wand over all of us and make things better.
Take care Norb and Carol. Wishing you all my best. Sending a hug.

Cheryl-Sure hope your leg is better.

Old Bat- So sorry you lost your companion. She watched over you all these years, now you can watch over her.

Saying a prayer for all of us that tomorrow will be better. Take good care.
Love, Emma

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August 19, 2008 at 8:35 pm

Hi Cheryl-just checking to see how you did today?

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August 12, 2008 at 3:19 pm

Sherry-hi, have you heard from Joshua yet??? Thought about him yesterday and prayed God would reveal His plan for Joshua. All my best to you all.

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July 28, 2008 at 8:44 pm

Hi Maggie, Just checking in to see how you are doing. How were the headaches?
Tomorrow I get my next two days of ivig and switching from Motrin to Aleve to see if that makes a difference. Hope it helped you.
From the last two weeks since I have been premeded with Tylenol and Benadryl, I had 0-2/10 headacdhe. Fatigued and in bed 2 days, Nausea twice in the last 2 weeks. Able to go grocery shopping, with help of a friend, but walked both huge store hanging on to a cart. No cane. Friend stated I did very good. 😉 Course I didn’t say that my legs were on fire plus both legs felt like lead. And to think that I walked 15 miles a aweek-doubt I will get back to that. But like I said before, I started with a walker and now use a cane once in awhile. And I have a combination of remit/relapse and progreccive. Not sure what helps what, but really feel like I have relapsed. So we will see how tomorrow goes.
Take maggie. Emma

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July 25, 2008 at 11:12 am

Atlanta got together a GBS/CIDP chapter meeting a few weeks ago, my first in twelve years since dx. It was great to meet new friends and discuss the changes in our lives. Thread is a great idea.