Joan F

Anonymous
January 30, 2008 at 10:47 am

I have received 13 IVIG treatments at an Out Patient Onocology Center and Medicare with a supplement has paid for them.
I was dx with CIDP in Nov. 2007
I’m also on Prednisone 40 mg a day and reducing the dose weekly
CellCept 2000 mg a day
Arava 20 mg a day
At this point I have not made much if any progress. See MD today
Good Luck in getting Medicare to reconsider. The MD may have to put down a different diagonistic code.

Joan F

Anonymous
January 9, 2008 at 5:03 pm

I was dx with cidp in Oct of 2007. MD started me on Prednisone, CellCept, and IVIG. He does not routinely do nerve bx.
From my elbows to finger tips are numb, tingling, painful, and clumsy. From above my knees to my toes are the same way. Like when they go to sleep and first start to wake up. I now use a walker to get around. My gait is lilke a sick duck.
I do have elevated protein in spinal fluid and blood work is abnormal. also have mgus with igm spike.
I hope they will quickly start tx on your husband and he has a positive response.:)