October 26, 2011 at 4:45 am

[FONT=”Microsoft Sans Serif”]I decided to contact my friend, the one on high dose curcumin and he wrote me the following:
[I]Alice just saw this note…..

6 months tumeric everyday and no IVIG, my neuro is excied as am I. Actually it feels normal to be normal. I most recently had a cold and then slight cidp will kick in, however, I just keep the curcumin protocol and literally the next dose gets rid of it for me.

Vanessa can testify that it has been a miracle for me

I knew within the first 48 hours that curcumin was working, actually less than that. I can expand further over the phone sometime. Life extension “super bio-curcumin” 400mg. I take 12 pills per day with food; game changer. not the 800mg with bioprine– the regular super bio curcumin. I’m benching 295 and doing plyometrics and running 5k(twice) and eliptical 3-4 times per week.[/I]

He had been on IVIG for a while, 2.5 years I think. He felt so badly, he had contacted me to ask about SCT. We spoke and he went to NW for an evaluation. Unfortunately, and to his severe disappointment, he was denied entry. He returned to his home state and resumed IVIG. Then, some months ago, he contacted me and cautiously told me the success he was having with curcumin, specifically the one without pepper…

We have stayed in touch and what he writes above is his response to my asking for an update. I don’t [I]think[/I] he is interested in posting here in any steady way but if anyone were interested, I could ask him if he would communicate directly to them.

Hope this helps.



February 7, 2011 at 6:51 pm

Thanks for caring, it does mean alot to me:)
I am so sorry that you ended up with G.B.S from getting the vaccine, it is not fair, this awful illness we all have gotten.
I always try to tell everyone that crosses my path, about the chance of getting G.B.S from any vaccines, especially in flu season. As the public, we are not told about the chance, albeit small, of getting G.B.S from a flu shot, and even if it is a mild case, we should still be given the warning, so we can research it, and make our own minds up about getting the vaccine.
I am pretty sure that I got mine from the bacteria that is in most of the poultry that we eat, as getting it from that is when the cases are pretty
severe, with the most damage, and more lasting effects.
I also tell people about eating poultry that has the bacteria that can cause G.B.S., but I must be careful, as the people who raise and sell poultry would be very upset with me for spreading that fear to people.
G.B.S in any severity, can change a person’s entire life.
I hope that by reading about the meds we all take, that something will work for you. Keep positive!


December 7, 2010 at 7:21 pm

[FONT=”Microsoft Sans Serif”]that’s pretty cool, i didn’t take that route because i was scheduled via the trial… but they are pretty fancy at NW– lol.[/FONT]


May 14, 2010 at 12:43 pm

Welcome to the GBS/CIDP family Jessicah! I too, want to thank you all for your support, caring, sharing, & prayers, & helpfulness. Their is comfort sharing with sooooooooooooooooooo many fellow sufferers & family members.
When I fisrt got sick I was terrified, watching my health, & sanity go down hill. Knowing something critical was wrong & worse, Drs. not knowing what was wrong. They kept refering me to other Drs. I stopped counting at 13 Drs.
Anyway, thanks so much everybody!