I would ask for your Dr to start the ivig as soon a spossible if i were you. Its the safest treatment with the least side effects.
Stress and anxiety can worsen the symptoms of cidp. So even having to worry about your treatments etc adds to the stress.
I have found that having a plan helps me cope with all of this. Be very open with your dr. ask him/her whats next? what if that doesnt work? how long should i give it? I write down all my questions prior and discuss them right off the beginning of my appt.
plus knowing what you will try next if one thing isnt working will give you time to research it, ask others experiences etc–let your Dr know this.
i also share with my dr what has been successful for others from here. Example she told me “that if ivig doesnt work then plasma exchange wont either” I told her there have been several members who have had great luck with pe after ivig failed.— My next step if ivig fails is now pe.
Finding a dr who listens to you and respects your suggestions is so important with this disease. even if they need to send you other places to get a diagnosis or testing—you can do that and still keep the same dr. good luck with your upcoming appointment, i hope you find answers—and dont leave until you have a treatment plan in place 🙂 it will help with the stress!! Lori

I would ask for your Dr to start the ivig as soon a spossible if i were you. Its the safest treatment with the least side effects.
Stress and anxiety can worsen the symptoms of cidp. So even having to worry about your treatments etc adds to the stress.
I have found that having a plan helps me cope with all of this. Be very open with your dr. ask him/her whats next? what if that doesnt work? how long should i give it? I write down all my questions prior and discuss them right off the beginning of my appt.
plus knowing what you will try next if one thing isnt working will give you time to research it, ask others experiences etc–let your Dr know this.
i also share with my dr what has been successful for others from here. Example she told me “that if ivig doesnt work then plasma exchange wont either” I told her there have been several members who have had great luck with pe after ivig failed.— My next step if ivig fails is now pe.
Finding a dr who listens to you and respects your suggestions is so important with this disease. even if they need to send you other places to get a diagnosis or testing—you can do that and still keep the same dr. good luck with your upcoming appointment, i hope you find answers—and dont leave until you have a treatment plan in place 🙂 it will help with the stress!! Lori

Hey Jan! This game is certainly a fun one~ I have had a blast reading all the responses and some are so funny! Thanks for adding this to the forum~ 😀
Linda H

I saw this thread late but know what you are talking about. Today my feet hurt and my left foot is tingling. Sometimes soaking my feet in hot water helps and I take advil when the pain is really bad. Also, massaging my feet with Vicks helps.

When I can, I wear New Balance athletic shoes with special insoles. I go to a shoe store that has you stand on a platform that takes a computerized image of your foot and then tells you what insert you need. They cost about $45 a pair, but are worth it.

Take Care, Susanne

Jan! Filler me up! I’ll start with 2 quarts please!

Thinking of you this day and saying prayers.