Hello J Earls,
Wellcome to the forum family. You are not alone. We all have hair loss. Mine fell out many times, have 5 wigs. Have to keep my hair very short. I Don’t want to be prideful about it anymore, will go bald everywhere. Most of us have difficulty swallowing at some time or another. Weight loss, some women gain weight even with no appetite. The balance will get worse. You mentioned your neurosurgeon, you need a neurologist & you most definately need to read all you can, & ask as many questions as possible. Read every post & blog on this site.
Best of luck to you. My heart & prayers go out to you.