November 18, 2006 at 12:08 am

I think there are just so many variables involved with this illness, that no two people can be compared. Many prefer IVIG to PP, just because all that is needed is to have an IV put in, as opposed to a catheter installed (my first one was in the groin area.) But the main purpose of both is to simply arrest the destruction of the nerves by the antibodies in the immune system. Before these treatments were even around (not all that long ago), most people still made good recoveries from GBS. Some people, even with the most severe cases, make full recoveries, while others with “milder” cases never make full recoveries.

I do not believe that it is all attitude (who isn’t trying their best to recover,) or how hard one tries… instead I think this illness runs its course differently in every person’s body. Age & previous health might make a difference, but so many have posted here that were in prime health, yet they did not make the best recoveries. Everyone needs to do the best they can with what they are dealt & left with, & quit beating themselves up because someone else recovered better than they did. I would love to walk without AFOs & a cane at my age & have the full use of my hands back, but after 4 1/2 year I know that isn’t going to happen.

Did I try hard enough? I believe that when my neuro, who is a world-reknowned specialist still tells me he still doesn’t know how I am able to walk (not enough nerves functioning); that I did try hard enough. He also said my hands were too damaged to ever get the use of them back, yet I can do almost everything I need to do with them. I also believe I kept a good attitude for the 3 years I was in a power chair, but we all don’t make the great recovery that the books tell us we should…