IVIG Not Helping – Any Advice?
We’ll discuss the steroids again with the neurologist and the endocrinologist. We’re damned if we do and we’re damned if we don’t! Thanks each and every one of you for your concern and your prayers.
IVIG Not Helping – Any Advice?
Patty
My neurologist just changed his diagnosis from GBS to CIDP because I acquired double vision 2 months after receiving the IVIG. He has me starting a mega dose of Prednisone and then they will give me a second IVIG next week. The plan is to ween me off the Prednisone as I recover.
I don’t know if this option will work of even if it is vailable to diabetics. Many sites to include this one shows this option as the preferred treatment for CIDP.
I’ll include you in my prayers
gene CIDP-09/16/2006
IVIG Not Helping – Any Advice?
Hi Helen,
Thanks for the advice on the insulin. The problem with increasing the insulin is that he is already on four shots of insulin a day, 65 units, which I believe is a lot. His kidneys had already started showing damage as a result of the diabetes and high blood sugar. Even with the insulin, his blood sugar level is less than ideal, so it’s extremely risky to put him on steroids. I appreciate the help and caring though. I don’t want to discourage anyone from giving advice because that’s probably the only way we’re going to get help on this. Thanks again:)
IVIG Not Helping – Any Advice?
Thanks for your advice. Unfortunately, my husband’s doctor is not recommending the plasmapherisis because of his diabetes. He also can’t do the steroid treatment because it drives his blood sugar up too high.