IVIG how often?

Anonymous
November 29, 2010 at 1:27 pm

I got as few as none (hahha doesn’t count, does it?)

Ok, as few as two days in a row once a month for 5 months and then discontinued (the neurologist feared ‘infection and death’). His words, exactly. This was not enough, decline continued.

I was put on another plan several months later of twice a week for three months, and then started a taper of once a week for three months, then once in two weeks for a couple months. Once in two weeks was not enough, decline continued.

Now I get .4g/kg each day for three days every 3 weeks. And, that might not be enough.

However, I am also taking an immune suppressant with the doctors’ long term goal of tapering the ivig to nothing.