IVIG for Small fiber sensory neuropathy (SFSN)
Rhonda said something like ‘find an expert.’ Yes, you need to do that.
Here’s one in the USA at the Cleveland Clinic, a reputable place, who says she works with other doctors over the phone.
Here is an article from John’s Hopkins where they sum it up with: “…Treatment of SFSN depends on the underlying etiology…” It only means treat after the reason is discovered. Unfortunately, you will read that diabetes, pre-diabetes and as yet undiscovered diabetes is one major cause. Please don’t let this mislead you. Just be aware of it.
Well, how about that. I found it, right under my eyes. I see why. They spell out the whole name, no abbreviation. Here it is:
“…Systemic diseases frequently require more complex treatments. Strict control of blood glucose levels has been shown to reduce neuropathic symptoms and help people with diabetic neuropathy avoid further nerve damage. Inflammatory and autoimmune conditions leading to neuropathy can be controlled in several ways. Immunosuppressive drugs such as prednisone, cyclosporine, or azathioprine may be beneficial. Plasmapheresis-a procedure in which blood is removed, cleansed of immune system cells and antibodies, and then returned to the body-can limit inflammation or suppress immune system activity. [COLOR=”Red”][U]High doses of immunoglobulins[/U][/COLOR], proteins that function as antibodies, also can suppress abnormal immune system activity. …”
Located here: [url]http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropathy.htm?css=print[/url]
It’s a long way down under ‘What treatments are available?’
The National Institute of Neurological Disorders and Strokes (NINDS) of the National of Institutes of Health (NIH) should be a convincing source for the power that be. Of course, they will only be convinced to use IVIG if, a big IF, an immunological malfunction is the root of the problem.