Is it GBS or not?
I read a little bit about this just now. Don’t need to exactly quote the National Institutes of Health to repeat what I read there.
1. GBS is very rare- goes to the point about some (most) doctors have never seen it.
2. In fast progressing cases the nerve and muscle conduction blocks may not be readily visible until a few weeks later.
3. This is a quote “…In Guillain-Barré, reflexes such as knee jerks are usually lost. In Guillain-Barré patients, the cerebrospinal fluid that bathes the spinal cord and brain contains more protein than usual.”
4. Another quote “…Several disorders have symptoms similar to those found in Guillain-Barré, so doctors examine and question patients carefully before making a diagnosis. Collectively, the signs and symptoms form a certain pattern that helps doctors differentiate Guillain-Barré from other disorders. For example, physicians will note whether the symptoms appear on both sides of the body (most common in Guillain-Barré)…
5. CAUTION: also from NIH- “The use of [COLOR=”Red”]steroid hormones [/COLOR]has also been tried as a way to reduce the severity of Guillain-Barré, but controlled clinical trials have demonstrated that [COLOR=”Red”]this treatment not only is not effective but may even have a deleterious effect on the disease.[/COLOR] ”
I’ve given you a lot to read. Well, read up, study, learn all you can.
I would ask-
Are there knee jerk reflexes or not?
Is there any evidence the IVIG was successful? How much IVIG was given?
Are the symptoms bi-lateral, meaning equal on both sides of the body?
And finally, from a number of sources, “…To confirm the diagnosis, a lumbar puncture to find elevated fluid protein…” I have not found a source to confirm you may have GBS and not have elevated protein.
If somebody here does, they may let you know.