Is it GBS or not?

May 10, 2011 at 5:07 pm

I read a little bit about this just now. Don’t need to exactly quote the National Institutes of Health to repeat what I read there.

1. GBS is very rare- goes to the point about some (most) doctors have never seen it.

2. In fast progressing cases the nerve and muscle conduction blocks may not be readily visible until a few weeks later.

3. This is a quote “…In Guillain-Barré, reflexes such as knee jerks are usually lost. In Guillain-Barré patients, the cerebrospinal fluid that bathes the spinal cord and brain contains more protein than usual.”

4. Another quote “…Several disorders have symptoms similar to those found in Guillain-Barré, so doctors examine and question patients carefully before making a diagnosis. Collectively, the signs and symptoms form a certain pattern that helps doctors differentiate Guillain-Barré from other disorders. For example, physicians will note whether the symptoms appear on both sides of the body (most common in Guillain-Barré)…

5. CAUTION: also from NIH- “The use of [COLOR=”Red”]steroid hormones [/COLOR]has also been tried as a way to reduce the severity of Guillain-Barré, but controlled clinical trials have demonstrated that [COLOR=”Red”]this treatment not only is not effective but may even have a deleterious effect on the disease.[/COLOR] ”

I’ve given you a lot to read. Well, read up, study, learn all you can.
I would ask-

Are there knee jerk reflexes or not?
Is there any evidence the IVIG was successful? How much IVIG was given?
Are the symptoms bi-lateral, meaning equal on both sides of the body?

And finally, from a number of sources, “…To confirm the diagnosis, a lumbar puncture to find elevated fluid protein…” I have not found a source to confirm you may have GBS and not have elevated protein.

If somebody here does, they may let you know.