In the same boat.
I’m new to this group too and this is my first post. I’m 45 years old and was diagnosed with GB last April of 07. I had no idea how my life would change after that.
Spent 8 days in the hospital with 5 days of IVIG. PT some of that week then home to be trapped in a my bedroom, It took days before I could even get down the stairs, scooting down on my butt and holding the railing. Everything was an extreme effort. When my 3 month temp handicap placard was nearing it’s term I asked for another one. Well, my doc set me up for a permanent placard, that news just devistated me. I’m not going to be a cripple for the rest of my life I thought.
Well, here I am, back at work after being off work for almost 2 months. Sore tired and exhausted. Yes, this cold winter is hard to take also. Had several more IVIG treatments, infact, have one scheduled for this Saturday. Hope it helps. It used to do more for me but doesn’t seem to work as well anymore.
The nuropothy was so painful, I was taking vicodin just to get throught the day. Finally my doc put me on Lyrica in Dec. It seems to help, only taking 25 mg for now but being bumped to 125 mg next week. Careful with the excercise, you think it’ll help but it requires a lot of energy and time to recover from. Want to talk with someone locally who has had this and get some support.
Some people here at work understand but others just don’t get it. Stress is a big factor. My performance started to slip and my boss wanted to put me on a performance inprovement plan. Well, she put me in a calmer environment and things are tollerable for now. I feel for all of you that have kids and family to take care of, I don’t know how you do it, but keep it up. Well, enough for now.
Dexter in Chicago