In similar boat!

January 29, 2008 at 1:58 pm

Sharon, My case started late Oct, ’07.
Eight days into it I was admitted to Kaiser Hospital not being able to walk.
The following is a brief description of my current situation.
I spent near an hour with Dr. Wong, a Neurologist with Kaiser Hospital here in the Sacramento area last Friday. ( I had requested a second opinion so this was my first visit with Dr. Wong.)
Because I was feeling better I had gone back to work for a month until last week when I noticed the returning of the former sensations. I repair copy machines. Perhaps I went back too soon???
He did the usual reflex tests, (No reflex action from my extremities, although about 3-4 weeks ago there was some reflex action in my legs.:confused: ), strength tests, poking and prodding with a semi-sharp pointed instrument.
He had studied my case to some extent and knew I had been in the hospital for a week in November ’07.
He agreed the rash was an allergic reaction to the meds. (Rash now is near gone.)
I told him about the recurrance of my numbness and tingling sensations, and he said that GBS, “NEVER” comes back.
I think I’ll take the GBS Foundation newsletter Trey, sent with the article on the recurrance of GBS and let Dr. Wong read it.
He was unaware of the existence of the GBS Foundation.
He said that I probably have CIPD. (I’m not sure how the diagnosis is reached???)
He prescribed Prednisone 20mg–4 tabs for 4 days, 3 tabs for 3 days etc.
This is now the 4th day and I notice almost no difference in the sensations.
I have noticed some weakening when trying to do some simple tasks, such as opening a screw cap jar or bottle.
Dr. Wong also said he would schedule an electrical nerve conductance test, but I have not had a call yet to get it done.
I must admit that I wonder where I go from this point??? Will I ever recover or am I being impatient with myself?
I too am scared. I don’t want to become an invalid or a vegetable!:eek:
PS Call your Doctor! Don’t delay!!!