I think the dx is bogus too because I looked it up and I have had no stressful event to have brought it on. I know it is not in my head. They did not do a spinal or repeat a nerve conduction study. It is like when it came back normal the first time they just chaulked it up to being nothing. I still have no idea the true dx. They just think because I have had past mental health problems this is another one. I hate being labeled this way when there is no need for it.
I don’t have the number for the foundation to even call it.
Take care every one.
All I know is the doctors said they don’t think it iss GBS because the nerves showed normal. So they said that what I have is eventually going to go away and the name is too long for me to really need to know. I will try to ask my nurse for the name mabye I will get more info out that way as the doctor doesn’t seem to want to tell me what. I will post it when I find out.