December 19, 2007 at 10:36 pm

Welcome to the group.
I was dx with cidp in Nov 2007. six weeks ago and it has been a real roller coaster of a ride.
My legs are numb from knees to feet with the feet being numb, tingling, and painful 24/7. The same is true for my arms from the elbows to the fingers.
I have a weak trunk area. and i fall very easily. i now use a walker to walk and at times need a wheel chair.
i have found a lot of info on this site with real caring people who understand.
I also find the MD’s can not give answers, it is wait and see, it may burn it self out.
I’m on my second round of ivig for five days in a row infusion. i did not get very much of a response from the first five treatments, but MD felt it was worth another shot.
I’m also on prednisone 80 mg a day and cellcept 2000 mg a day.
i truthfully have been discourage at my lack of progress and was getting very depressed until i found this forum and found out that this does take time, patientce, and faith.
hang in there and know you have found people who understand and will give you support.