April 8, 2008 at 10:40 am
so sorry that you have this crazy syndrome. i was dx in Nov 2007 and it truly has been a roller coaster of a ride. without this forum, i do not know how i would of handled it.
i, also, was very active and have found the physical limitations and mental strain very difficult to deal with. the people here have given me insight and encouragement and what they deal with has given me hope. I hope you find this to be true for you
I agree, why are they waiting two weeks prior to starting IVIG. the sooner you get treatment the better
we are here for you