I wish I had answers?

What a quandry…..seems as if whatever you do you have drawbacks or the like.

Have you [I am sure you have and I’ve not kept up-sorry] talked all the pros and cons about long-waits long infusions, vs short-waits shorter more frequent infusions with your doctor/s? There seem to be ‘trade-offs’ all around.

I for one, very often feel guilty about my seeming ‘blood sucking’ [hey it’s Halloween and also appropriate!] tendencies. I get a huge dose monthly [every 4 weeks] and really count every day between infusions! The benefits of infusion far offset the potential side effects – usually.

I wish I could be of more help! Honestly, all that you and Kevie have gone thru and are going through keep me inspired, especially the keeping on with the going on. That IF you can deal with this, well I have to…and it should be easy by comparison. It all has kept me from becoming a wimpy mush ball. And from having self-pity-parties. For that I thank you from the bottom of my heart. Though I wish you did not have to have the experiences.

I wish I had the know-how or resources to help you more.