I went to Mayo Clinic
When I was first diagnosed, I wanted to go to the Mayo Clinic for a second opinion. The IVIG was being given too far apart and I was deteriorating quickly. I tried to get an appt at Mayo, but was turned down. So, I just showed up there! It was a 1,200 mile trip and I made it with my three year old! It was worth it, though because I got in, was diagnosed with CIDP, and a treatment plan was made. That was about 12 years ago. Wish you all the best.