I throughly understand

July 22, 2008 at 11:44 pm


As you can see there are alot of us who have the same problem so just ignore the ignorant comments as they are not useful to you. There are those who will not every understand unless they are in your shoes. I have not seen my own brother for at least 10 years and my sister-in-law was having a fit as they are finally coming to visit and there was not enough time for her trip to go to Kings Island, See friends in Kentucky, go to a wedding in N. Carolina and come and see me the caregiverand my husband too. So I told my brother not to come since he had to cram more into his trip than what he had time for he could come another time.

Well I think he was surprised but tried to still come. So after changing dates on me 3 times I said ok . They will only be here 1 1/2 days and I hope they feel like **** (excuse my language) after they see my husband. I have had so much company and most of the time I have enjoyed it but I do feel people should understand that this is hard both on him and on me and means I have to cancel things to do when we get company. I am gracious to others and feed them, entertain them as we have a boat , show them around, and of course clean up after them when they leave for the next visitors. Then my sister-in-law e-mailed me that I should try epson salts for my husbands feet for his fibromialgia(sp?) Whew. I wrote back what he does have and explained it again as I did before. IN DETAIL If it was not for the fact that I would like to see my brother I would have still said no. So it is not worth it to get upset and I have found many people who think they know all kinds of things to take for this disease, even my own children who live far away do not always agree with me on things but then they are still young and have not lived thru what we both know is so hard to take for both the patient and the caregiver.

It is very hard on me as the caregiver to see my husband so down and so moody and I cannot do enough for him. I am so proactive and he is not but I think that is part of the process. I cannot say I would not want to just give up if I was him also. But I just keep fighting for him.
So please take the bull by the horns and be strong . You deserve to listen to those who will help you through this and ignore the ones who seem to know everything but really know nothing. You might try asking him if he calls you when he got his MD license.
God bless you