I relate totally….
my strength decreased substantially for the year from onset to diagnosis. Physical therapy was something I had to ask my neuro for. It had not occurred to him as a primary issue as I was still mobile. I felt that my mobility and muscle strength was decreasing based on personal experience and the neruo testing….nerve conduction tests, and reflex tests… I got no objection to getting PT and was offered a number of options. I have been thru 4-5 rounds of PT during my subsequent diagnosis and other issues. All experiences have taught me well what exercises are best for me. Be sure to ask the prescribing doc to include a ‘program for home exercises’ as well. That way you will get a list or routine of simple exercises you can do at home using little or no equipment.
I hope this helps!