I don’t even know what to say, this is truly a nightmare. I was inpatient at Mayo in Rochester, MN for 4 months. Luckily for me, my two older children were done with college & on their own. My youngest was away at UMD, so I didn’t have that worry. I can’t imagaine if I had gotten sick when they were younger. When I was released from the hospital, Mayo had already set up weekly IVIG infusions (I was a very bad case) in my home with a home health care agency here in the boondies in northern MN. I see you live in Miami & the neuros are saying it is too much paperwork? Having the infusions at home is so easy & uncomplicated, can you demand your neuro set this up for you? I swear they are the most arrogant doctors out there (except for mine.) I wish I could do more for you, but I am just stunned by all of this.

Oh, Cathy, I am so sorry to hear of your daughter’s problems.

I hope the surgery was successful and she is making a good recovery.

Hugs to her!!!