I have POTS
I had to reply to this thread. I had GBS in 2001. I recovered pretty well…still paralyzed toes and footdrop but was working and doing well…then I got another virus in Sept 2008 and got POTS (postural orthostatic tachycardia syndrome). POTS is similiar to orthostatic hrpotension..both dysfunction of the autonomic nervous system. I have been pretty sick with POTS and my life has been turned upside down again so frustrating!!
I have posted on this forum looking for someone who might have insight as to a possible link betweent he two dysfuncitons..GBS and POTS. Both are neurological autoimmune responses…I am going to Vanderbilt in April looking for some answers…if I get any I will post!!:)