I have a suggestion

August 25, 2006 at 3:49 pm

Hi swimm,

If neurontin is not good for you mabye you could try topamax. That is what I am on and it woks. I have back pain too. In physio I use a “Tens” machine on my back. It seems to help a little bit. I don’t know if it is from my chair or what but I don’t get much sleep as a result because it keeps me awake most the night. You are not alone. The doctors I have talked to have done X-RAYS and they say there is nothing wrong and it is all muscular. So I am having to put up with the pain. I might get to have the Tens machine for myself but it means jumping through the hoops to get it because it is the government. I am almost wondering if this is normal for those of us dealing with GBS. That would be a good question. As this is a horrible thing to go through.