I do the same thing

May 18, 2009 at 2:56 am

Hi Shie! I have the CIDP but think I really had GBS at first but it didn’t get diagnosed at first. But I do the same exact thing every single night. Both sides of my body goes numb and when I wake up I have to sit there and work my legs with my hands to try and wake them up. My doctor called it sleep parylisis! He told me that is what the nerve damage I already have causing it. Told me that because I am active during the day that I don’t notice it as much but when relaxing and sleeping we can feel the damage and it is the sleep parylisis syndrome. All I have to say is that it is scary and I hate the feeling. So you are not alone on that one! I truely feel for you! Hope you get better soon! Hugs
Linda H