I care very much…

October 10, 2007 at 3:47 pm

Don’t ever doubt how much the people on this forum care about how you feel. We can understand so much better than the neurologists how you actually feel. I got up at 11:00 & feel like I need a nap already; this has been my life for the past 5 1/2 years. No one can understand this fatigue unless you have been through it. My husband tries very hard, but I know he can’t really feel what I feel. Not to mention all of the pain, it can be so overwhelming…

About your treatment, I have read other posts by you & personally feel that methotrexate is probably not helping you. Listen to your own body & if it not helping you by now, it probably won’t. I also don’t believe that this is your last resort. Besides, I think that drug is mostly for RA, not CIDP. If you ever want to talk just email your phone number & I can call you. I had/have a very severe case of CIDP & ran the gamut of all of the treatments out there.
Blessings, Pam