I am soooo sorry to hear all this!
I really am sorry to hear about all your son is going through – that is a lot for a little guy. I’m also sorry for you. I am an adult with CIDP. I know we have other moms on the forum, hopefully one of them will be in contact with you as I think it would be good for the children to communicate with each other. I know how difficult it is to find another adult who understands my challenges, much less a child.
I wish you total remission,