[FONT=”Microsoft Sans Serif”]and… I do know another man, one who is seeking SCT now, that came down with CIDP after getting shingles.

As Kelly says, it’s a reactivation of the virus itself. Who knows–[/FONT]

[FONT=”Microsoft Sans Serif”]after chris (NGG) told me about maca, i did a little research and decided to try it myself… it is true, it helps a lot with fatigue and has no jitters to accompany it. if fatigue or sluggishness plague you, you may want to give it a try.[/FONT]

I am in total agreement with you on this subject. Not only must one be able to accept what comes their way but also it is very important, in my opinion, to be able to view one’s circumstances from the perspective of finding the positives in it and not getting stuck on the negatives – what we can’t do. Changing, consciously, the negative thoughts into positive is crucial for me. I had a bad day yesterday. I woke with an overwhelming sense of foreboding, for no apparent reason, and could not shake it. Finally, I sat down at the computer and began a list of what I am grateful for. I haven’t finished the list yet but it helped. It took me till supper time to feel my mood had shifted but I enjoyed the evening. Today is another good day!

I have been to quite a few Symposiums and have noticed that there are many participants who view their lives with a positive, enthusiastic outlook. Most had limitations of varying degrees but they found ways to deal with this, it would appear, and still enjoy life.

Maureen

I agree the behavior on Black Friday is horrible. Never seen people be so rude and non caring. That is one reason I never shop on Black Friday. I do my shopping early where it is more relaxing. I hate being in large crowds.
But the Christmas Season in my childhood days were far more fun and enjoyable than today.
So many families are going to suffer this year. So sad our world has become commercial!

I agree! Good post!

I agree! Each person is different and can react differently. I have heard Cellcept with many in Lupus saying that has helped them alot. If they put me on one of these drugs again I would like to try that one out. But then I might take it and have problems with it!
I was given Lyrica and then Gabapentin. Both drugs I really don’t like the head feeling it gives me. But th Gabapentin helps more than anything else. Lyrica on the other hand did nothing. I even tried Buspar and that was a good drug too and actually helped but the Neuro gave me such a low dose that I was taking that like candy. So Gapapentin it is!

You stated my current feelings perfectly although I probably would not have said them. I am so glad that you did. It is hard that this life is so much a pendulum at this time. I hate the down times. Although one can appreciate the good times more than ever before, they seem so short and sometimes it is so discouraging to know that life is so unpredictable now.
Hang in there. There are lots of people that understand and want to say to you words of encouragement to keep going and hold onto that positive strength that helps most days.
WithHope for this to be all over as well.

I am also a nurse and have been very surprised at the lack of knowledge among the professional community. I knew what GBS was and was immediately mortified when the Neurologist gave me his first opinion (confirmed by later tests). I have found no support group or liason. I’ve wanted to make phone contact with persons who have contacted me via email — to no avail. I’ve even thought about revising my program of research to include this area.
I’m open to suggestions!!
Brenda