I agree with what’s been said

April 16, 2009 at 5:50 pm

Keeping a record of what dose you got and for how long is key to that headache thing tho….
I started out on 5-6 hour infusions until it was shortened to 3.. Now IF the rate is just right? I can do a huge dose in two-1/2 hours. BUT, if you’re not used to it, not prepared, not pre-medicated you will get some killer headaches!
IF I were you? I’d call my neuro and ask: is 2 hours right for me now? I’m getting very bad headaches and they don’t seem to go away soon [a day or less] Am I doing something wrong? Can you help me?
I will bet asking these questions this way will change things dramatically. At least, I sure hope so!
Yes, your doc can be a long way away…but that telephone is something he/she can’t ignore for long. And don’t let calls go un-returned!
I’m crossing my fingers that it ultmitaly helps you – we all need all that help we can get!