How you are.

December 20, 2009 at 12:02 am

Being right is perhaps not the best question to ask. People can definitely have GBS twice. People can also have CIDP that shows up looking all the world like GBS with a long space between episodes and with a relapsing remitting course meaning almost complete recovery between episodes (although more people on this site have an underlying progressive baseline to untreated CIDP). Usually GBS is faster in onset of problems and more severe, but not always. Classically GBS is caused by autoimmune damage that happens and stops and CIDP is autoimmune damage that continues unless treated. On another thread, you say that you are being treated with IV IgG and that the tingliness has increased with a delay in therapy. This sounds a little CIDPish. There is probably a continuum between the two diseases and really what is most important for you is that the IV IgG has helped you and how you are now. I also would guess that, because she loves you, your mom wants very much for you be treated as CIDP with continuing immunoglobulin if it is helping you. The right name is not as important as the fact that you are getting better.WithHope