How often & how much IVIG

April 17, 2011 at 5:01 pm

My feedback is that from the time I dropped from 1 infusion per week to 1 infusion in 2 weeks I slowly, slowly got weaker over the 6 month period.

During my 5 months on 2 times once a month, which preceded 3 months of 2 times per week I not only did not maintain the 5 day loading dose improvement, I steadily got worse at a faster rate.

I do not know a good way to figure out how much is enough or which doctor will give it to you except by trial and error.