How long on immunosuppressant

February 16, 2011 at 8:54 pm

exo, as in ex old surfer, right????

My case is only perhaps a pinch more complicated than some others. At Cleveland Clinic in 2007 they said I did not have a demyelinating condition.

At the local neurologist they (two of them) tried IVIG in 2007-2008 for 4 months and then stopped it. One of their comments was that I had already seen their teacher, the guy at Cleveland Clinic So, when I asked for a referral, they answered ‘…what for? you’ve already seen the best…’

At Mayo, Minn in 2009 the first 3 doctors on my first visit each stated, “no, there is no other medicine you can take.” Now, here’s what my wife says, “yes, but you didn’t have the nerve biopsy results yet.” True.

So, the answer to your question is that Mayo Minn started me on Imuran (azathioprine) in May 2009 50mg/day for 1 month, then 100mg/day for 1 month, then 150 mg/day on and on and on.

They cautioned, as did the UCSD Specialist, that azathioprine could take as long as 1 year to be effective. The marker we are watching is the white blood cell count (WBC) to maintain at, near or above 3,000 u/l. Liver enzymes are also watched.

I don’t recall ‘normal’ grip strength. As bear said, certainly above 100.