How are you doing with all this?
My husband came down with GBS, later changed to CIDP the beginning of the year. He didn’t go as far down as your wife. He declined for months. I remember the sheer terror of the situation and helplessness I have felt though this whole ordeal.
I wish I could give you great advise, like “it will get better”. You both will get through this….but I am not there yet.
Posting here is what helped me get through each day. I have never felt so completely helpless and out of control in my life.
My advise is, take a bit of time for yourself. Go get a cup of coffee and breath. I didn’t do any of this until Marshall started getting better. That was 4+ months. I was a wreck. Well, I am actually still a wreck.
But, my husband is walking now (with a cane and braces). If you need to talk with someone, please email me! [email]firstname.lastname@example.org[/email]