Housework…

I did not make a great recovery (from CIDP) either. After 4 1/2 years I know that this is as good as it’s going to get. I walk with AFOs & a cane when I go out. I do have to use a shower chair & hand-held shower, but after 2 years of only sponge baths, I am grateful for that. I was a pretty low level quad for almost 3 years, & found I did lose most of my friends. But I am 53 & most of my friends are still working, & many are busy with their children & grandchildren. Whenever I do go out with friends, I always have to initiate it. I call people & they seem glad to hear from me, but unless I call someone, only my mother or mother-in-law call here. But at least I do have 3 wonderful children (who live on their own) who stuck by me through all of the really bad times, for them I am also grateful.

I became ill in March of 2002 (very rapid decline), & by November we had hired a housekeeper to come in every two weeks. It is such a godsend, it takes her only 2 hours to change the bedding, clean both bathrooms, scrub all of the floors, dust & vacuum. My husband is retiring in 6 weeks, but he said he wants to keep the housekeeper. I guess it is a luxury we cannot afford to be without. He is my best friend, so I will always have someone to do things with. For that I am grateful as well… I can live with the pain & numbness every day as long as I have him & my family supporting me…
Pam