April 7, 2007 at 11:40 pm

I too want to say don’t give up. Every day your mom is alive, is hope. I was never on a vent or as sick as your mom, but I am one of the senior members and I was severly damaged by CIDP. I have been in a wheelchair since 1999 and though I am now stable with CIDP, I was left with alot of residuals and will probably always be partially dependent on a wheelchair. To top all of this off, I was recently diagnosed with a SECOND chronic syndrome that will progressivly damage the muscles that CIDP does not attack. I have HOPE though, the second syndrome moves very slowly, so my age is in my favor.
You can recover from GBS very very slowly, five to six months feels like a life sentence to you and your mom, give it a year and then look back.

I was just wondering where you are from. I have a friend who is a nurse in a vent clinic and perhaps she cares for GBS patients.