December 2, 2009 at 5:21 pm

Dear Elmo
Well I tried, with my exhusband, prior to my diagnosis to exlpain what i could and could not do anymore. But than i have to say my marriage was on shaky ground. He was very understanding for a short time and then it seemed, I guess, that I could not provide that which he needed. At the time I will also add I was bedridden mostly with spotie paralysis from the cheeks down. Needless to say he left me.
Now that i am out of bed and on my own it just seems to me that if you truly have a good marriage that perhaps finding things you can do together, date night, movie ect… is a good place to start. I also feel that some modern day couples live lives very differently with allowing their partner to continue their able lifestyle as they find they need to; perhaps with groups that do these sort of outings. This is such a deeply personal issue with our family members about what we can do today as opposed to what our lives were pre- CIDP. I was the person who always cooked all the family dinners at holidays. Now I can only make the pies which put me in bed for 2 days, but is worth it.
This is not ment to upset you, I find in these years that the marriage vows i took, through sickness and health, simply was not in my husbands character. But talking to your wife about this issue seems like a must so as to begin a new path for the both of you. I will keep your family in my prayers.


May 21, 2008 at 11:27 pm

Foot pain stinks..I think it is different for everyone. I have to keep socks on all the time but if i wear shoes it is usually a pair of tennis shoes, however, for those that like flip flops, adidas and I think Nike both have come out with a pair that has a cushiony sole, almost like your foot is resting on memory foam. I swear I am going to get a pair. So that might help a little..Good luck sweetie.