Hi Shiela

May 10, 2007 at 11:51 am

Welcome. Sorry to hear that you have CIDP. As the previous posters have said, it’s different for everyone. Mine is relapsing/remitting type and came on in a “classic” presentation of gradually increasing weakness. It started in legs (noticed that stairs were a bit harder to climb) and hands (had trouble pumping the hair spray bottle). Luckily, pain has not been an issue for me. The weakness, however, eventually became really bad so I got all the tests, was diagnosed, and started IVIG last July. It has been a miracle for me. My strength is totally normal as long as I keep getting infused.

Other symptoms that emerged over time was partial numbness in feet, occasional shooting pains (always had these but I get them more now, especially in my feet/toes), “burning” feeling in soles of feet, muscle twitches, and hand tremor. The tremor didn’t start until after IVIG, so I’m not sure if it’s from the drug or the disease. Fatigue is an issue for me, but it was not an early symptom. More so the effect of overcoming the weakness to go about daily activities, and now it varies. We just have to be careful not to overdo things and rest when needed (the laundry will still be there tomorrow ;))!

Take care,